Working with patients with rare, genetic, and autoimmune diseases — helping them to manage their condition with ease and comfort..
ARTICLES
INTRAVENOUS SALINE INFUSION IN POTS
The value of Intravenous saline infusions for acute control of heart rate symptoms in POTS patients was demonstrated in a 1990's article by Dr. Biaggioni and colleagues entitled Effects of Volume Loading and Pressor Agents...
POTS CAN MEAN LOSS OF AUTOMATIC CONTROL OF HEART RATE
POTS can quickly transform fit, healthy individuals to a state where even the simplest tasks seem difficult and monumental
POTS vs MAST CELL Navigating the Complex World of Chronic disease
WHAT HAPPENS WHEN TWO OR MORE CONDITIONS THAT ARE VERY COMMON CO-MORBIDITIES RESULT IN OR REQUIRE POTENTIALLY CONFLICTING TREATMENTS OR DRUG THERAPIES? THIS TAKES AN EXPERT WITH KNOWLEDGE OF THE ENTIRE SPECTRUM TO SORT OUT AND PRIORITIZE. HERE ARE...
SOME THOUGHTS ON MCAS/POTS/EDS
Practicing medicine for over thirty years is an exercise in intellectual humility and wonder at the fascinating harmony of the natural order. Each system is delicately balanced by some unseen Force with an intelligence that is outside of the limited power of linear...
USEFUL QUESTIONNAIRES
THER ARE MANY QUESTIONNAIRES THAT HAVE BEEN DEVELOPED OVER THE YEARS WHICH ATTEMPT TO QUANTIFY SYMPTOMS EXPRESSED BY PATIENTS WITH A VARIETY OF CONDITIONS. I HAVE GATHERED SOME OF THE CLASSIC ONES HERE FOR YOUR USE. SF-36 THIS IS A 36...
EHLERS-DANLOS/JOINT HYPERMOBILITY AND DYSAUTONOMIA
There is a definite association between EDS/joint hypermobility and dysautonomia as well as MCAS. These syndromes have been linked in epidemiologic surveys although the mechanisms by which they are connected are still being elucidated. Perhaps the underlying...
THE OTHER TICK BORNE SUMMER DISEASES
WHAT IS TBRD?? The TBRD is a really sweet classic auto known and loved by generations of car lovers. But the more ominous designation of TBRD - Tick Borne Rickettsial Disease - is something that you should also be aware of because of its similarity to other...
Mast Cell Activation Syndrome (MCAS): What Is Going On Inside My Body?
Mast cells are found throughout the body, particularly at the interfaces with the outside world (such as the GI tract, the respiratory tract and the bladder) and are meant to be sentinels on the lookout for invaders that can potentially cause harm to the organism. As...
PROBIOTICS
Mechanisms of action of Saccharomyces boulardii (The probiotic supplement known by trade name FLORASTOR). Among the probiotics FLORASTOR is unique in it's scope of actions documented by scientific research. Everyone should give serious consideration to...
The 411 On Fluid Replacement
Hydration is crucial for maintaining optimal health, but for people with dysautonomia it can be far trickier than simply making sure you have had your 8 glasses of water for the day. Finding the proper balance of hydration and water retention is important to keep...
